About This Blog

2014-08-17 11.18.46Hello!   I created this blog in August 2013 while supporting my autistic son in his move from school to adult services. Despite years of planning for this transition the process was stressful and frustrating, culminating in me taking legal action on Dylan’s behalf. Setting the blog up seemed a good way of sharing what I’d learned with other families. Little did I realise that it would be two years before Dylan was allocated an appropriate setting nor could I have known how challenging the journey would turn out to be.

The story of my battle to secure a specialist placement for Dylan is told in some of the posts on this blog (in the Policy and Provision category). There are also some more general pieces on the challenges and celebrations of caring for someone who is autistic. A contents page on the blog provides links to individual posts and a theme cloud in the right sidebar identifies posts by subject. The posts are grouped into general topic areas using the following categories:

  • A Parent’s World: reflections on being a carer
  • Dylan’s World: my observations of my son
  • Environment and Community: Dylan’s interactions with society
  • Policy and Provision: education, health and social care sectors (UK)
  • Science and Magic: reflections on causes, diagnosis and neurology
  • Language and Communication: reflections on Dylan’s speech and language development
  • The Creative Arts:  representations of autism and Dylan’s relationship with the arts

In September 2015, after Dylan had moved into residential care, the focus of the blog shifted from ‘Living With Autism’ to ‘Living With/Out Autism’. Instead of documenting the struggle to secure appropriate provision for Dylan, my concern now is with learning to live without him. I have set myself the challenge of 100 days for the first part of this new journey; my aim is to use the space to make brief daily observations about the process while the clock counts down to the shortest day.

Thank you for reading!


Autism affects individuals and families differently and my posts can only offer accounts based on the particular experience of myself and my son. Although I work in a university department which has an autism centre, the perspective in these posts is that of a parent. My work as an educator does, however, affect my views on autism and the choices I make in relation to my son; these perspectives will sometimes be evident from my posts. Perhaps more importantly, however, I am a poet. My orientation to Dylan and to autism is, I believe, as much a consequence of my poetic practice as any perspective I might have developed as an academic or mother. This creative and writerly approach to understanding and responding to autism influences many of my posts.  I hope that you find them interesting.

19 thoughts on “About This Blog

  1. Ah, now see, like I said, I needed more input before I reacted to what you said. I thank you for sharing. I know it can be very hard and at other times very easy. The karmic god of ha ha on me just struck…my son just forgot how to heat soup and know the size of the pan and well at least now the counters are clean :)


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  3. Hi Liz,
    I just read your passages and saw your pictures over on Christy and Jennie’s Words site. Your words and photos filled my heart with joy-especially the story about Dylan and his perception of the leaves being hair. It made me cry!
    I have no first-hand experience with autism, so I look forward to reading more of your talent and learning as I go. I hope you don’t mind if I tag along.


    • Hello Michelle – thank you for taking a look at my blog and for your lovely comments. It would be great to have you go on reading my posts – welcome! I’ve no way of knowing, of course, but I suspect that as many (maybe more) of the people who follow this blog don’t have direct experience of autism themselves. I like that :-) There are so many things which Dylan has done and shown me over the years which have moved me, but like you I find his description of the trees growing hair so beautiful. Every Spring that’s what I think when I look at the new leaves – not long now! Very glad to meet you through Christy and Jennie – any friend of Christy’s is friend of mine (I haven’t kept this blog for very long but I have been so touched by her courage, generosity and friendship). Look forward to finding out a little more about you too, as we go… Liz


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  7. Hello again, just poking around a little. The time stamp on your comment suggests you’re on the other side of the pond but the words you use, not so much. Either way, it’s always interesting to see how others live their lives and what some may not recognize as an adventure but is laid out before you so obviously to travel with a companion. I bet he sees many twists and turns in the road most including yourself would be completely oblivious of.


    • Hi there – thank you for looking around :-) You’re so right about the twists and turns – although I try hard to understand Dylan’s world and see through his eyes I think I am definitely in iceberg territory – I am simply scratching at the surface. At the moment things are pretty tough for Dylan and I’m struggling to make sense of what’s going on enough to help him – so, yes, plenty of stuff I’m oblivious off. Very interesting that you pick that up about my language – yes I’m in England but years ago I lived briefly in the USA (Boston area) and a finely-tuned ear can hear the legacy :-)


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